All Posts

The U.S. Department of Health and Human Services (HHS) Secretary Robert F. Kennedy, Jr. today approved the addition of Duchenne Muscular Dystrophy (DMD) and Metachromatic Leukodystrophy (MLD) to the Recommended Uniform Screening Panel (RUSP) following scientific review and public comment. Early detection of both conditions allows children to receive FDA-approved therapies at the most effective time, helping to slow disease progression and preserve their quality of life. Read

Mark your calendars and get ready to join us for an exciting event filled with purpose, community, and hope as we continue our mission to raise awareness and support the fight against Duchenne Muscular Dystrophy. Saturday, April 3, 2027 5:30 - 9pm Foundry 48 at 100 W. Millport Road, Lititz, PA 17543 Sponsorship opportunities are now available! Whether you're a local business, community partner, or passionate supporter, your involvement can help us make a meaningful impact. Vi

One father. One powerful voice. Standing at the Capital, sharing the realities of Duchenne Muscular Dystrophy and rare disease - not just as an advocate, but as a dad fighting for his child and every family walking this road. Turning love into advocacy and advocacy into action. Watch, follow, like, and share our Instagram post: https://www.instagram.com/reel/DeCWywRzgWC/?mdxt=dnh5amhxa3cxOXhh

Decker's Blueprint is dedicated to raising awareness and funds for Duchenne Muscular Dystrophy (DMD) specifically around nonsense mutations and rare exons, with the ultimate goal of finding a cure for this debilitating disease. Decker’s Blueprint sponsors basic, translational, and clinical research and awareness programs. The Decker’s Blueprint Scientific Advisory Committee is vital to ensuring funding support for quality research with the greatest opportunity of achieving a

PA state Representative Nikki Rivera joined advocates for a press conference outside the state Capital to raise awareness and call out the need for greater funding surrounding disease research, specifically Duchenne Muscular Dystrophy, a rare genetic disease. DMD prevents the body from making dystrophin, which is needed to heal and reproduce muscles in our body. View Press Conference here: https://www.youtube.com/watch?app=desktop&v=9Xu-E9nKVDA&feature=youtu.be

A special moment on September 30, 2026, as Senator Martin introduced Decker and his family and friends on the Senate floor. An incredible opportunity to bring awareness to Duchenne muscular dystrophy anad rare disease, amplify and remind everyone why advocacy matters. Every voice, every step, and every moment brings us closer to a cure. Watch here: https://vimeo.com/pasenategop/93026martinguest

Save the Date for Decker's Blueprint's second annual Dinner & Auction Gala, April 3, 2027.

Join us for Decker's Blueprints First Annual Golf Outing.

Despite its recent establishment, Decker's Blueprint has achieved remarkable early success.

Dear Friends and Supporters, Today marks World Duchenne Awareness Day—a global moment to unite in awareness, action, and determination to...