Driving Impact on World Duchenne Awareness Day – See What We've Accomplished Together
- Decker's Blueprint
- Sep 6
- 2 min read

Dear Friends and Supporters,
Today marks World Duchenne Awareness Day—a global moment to unite in awareness, action, and determination to end Duchenne Muscular Dystrophy. This is not about waiting or wishing—it’s about moving fast and making measurable impact.
At Decker’s Blueprint, we’re laser-focused on accelerating research, cutting red tape, and fueling breakthroughs like tRNA and exon-skipping therapies that can change lives. Every step forward brings us closer to ending Duchenne—not someday, but as soon as possible.
As we reflect on this important day, we're thrilled to share the incredible progress we've made together at Decker's Blueprint.
What's Under Construction at Decker's Blueprint
🗣️ Raise Awareness
Founder, Dan Murphy, met with several representatives including Congressman Lloyd Smucker to advocate for our Duchenne community and we shared flex poses with President Bush, Brandan Graham from the Eagles, and Ron Jaworski to name a few
💰 Fundraise
Our inaugural March 2025 Gala- Watch the Highlight Reel- was a success! We raised over $400,000 once all donations were processed from the event, and our collective efforts are opening doors to better research funding and support
💪 Fuel Resolve
Dan and Lauren Murphy attended Parent Project Muscular Dystrophy's Annual Conference in Las Vegas and connected with leading researchers Drs. John Lueck and Samuel Mackenzie from University of Rochester
🏗️ Build a Future
Decker participated in an imaging study at the University of Florida for future clinical trials and had the opportunity to visit Dr. Flanigan's lab at Children's Nationwide Hospital and view his own muscle biopsy under a microscope!
This World Duchenne Awareness Day, You Can Make a Difference
On this important day of global awareness, we invite you to be part of the solution.
Your contribution directly supports:
· Critical research initiatives (Next-Gen Science)
· Driving advocacy that removes barriers and speeds treatments across the rare disease community
· Supporting innovative trial designs that deliver answers faster and reach more patients
Every donation, no matter what amount, brings us closer to a world where Duchenne no longer limits our children's futures.
We're energized by this momentum and remain deeply grateful for your continued belief in our mission.
Thank you for standing with us, with Decker, and with every family fighting DMD. Together we're building a stronger path forward.
With gratitude,
Decker's Blueprint and The Murphy Family














