Dan Murphy

The U.S. Department of Health and Human Services (HHS) Secretary Robert F. Kennedy, Jr. today approved the addition of Duchenne Muscular Dystrophy (DMD) and Metachromatic Leukodystrophy (MLD) to the Recommended Uniform Screening Panel (RUSP) following scientific review and public comment. Early detection of both conditions allows children to receive FDA-approved therapies at the most effective time, helping to slow disease progression and preserve their quality of life. Read More:...

Mark your calendars and get ready to join us for an exciting event filled with purpose, community, and hope as we continue our mission to raise awareness and support the fight against Duchenne Muscular Dystrophy. Saturday, April 3, 2027 5:30 - 9pm Foundry 48 at 100 W. Millport Road, Lititz, PA 17543 Sponsorship opportunities are now available! Whether you're a local business, community partner, or passionate supporter, your involvement can help us make a meaningful impact. View sponsorship...

One father. One powerful voice. Standing at the Capital, sharing the realities of Duchenne Muscular Dystophy and rare disease - not just as an advocate, but as a dad fighting for his child and every family walking this road. Turning love into advicacy and advocacy into action. Watch, follow, like, and share our Instagram post: https://www.instagram.com/reel/DeCWywRzgWC/?mdxt=dnh5amhxa3cxOXhh